Saturday, January 24, 2015

3 Month Check

This week Wednesday Les had another 3 month checkup at UW.  These appointments don't tell us anything that we don't already know; as Les likes to say "I still have ALS and I'm still deteriorating..."  But it's nice to check in and visit with our "friends".  We almost missed nurse Jen - but the receptionist made us wait as we were leaving and we ended our day with a nice chat with Jen.

This was a new adventure for us because we took the van and wheelchair.  A little more stressful for me, the driver!  And then there wasn't any parking in the stinking parking garage....ugh.  BUT we made it and the van worked great.  Les was a little sad - another milestone - he said he always wondered about the first time he would go to UW in his wheelchair.

Les' weight is hanging right around 180 so that's good.  His limbs are definitely getting weaker.  His right hand/arm is pretty much useless.  He drags his left foot/leg which makes walking very difficult.  His right leg is also getting weaker.  He had a lung test (which is difficult to do with a stoma!!) but his lungs looked pretty good.  He is still eating and enjoying that so much.  It takes a while and it's a little messy, but he is eating!

We also met with the ENT clinic because Les was feeling air puff out in the skin above his stoma.  He was a bit worried about this.  But the doctor ran a scope through his stoma and through his nose and everything looked fine.  Dr. Hillel was in Portugual at a conference of some sort - a pretty prestigious thing to be at!!

Dr. was excited to use a new "toy"!!!
The cleaning fairies made an appearance while we were gone for the day.  Clean windows!  Clean sinks! Clean basement!  Mopped floors!  It's such a great feeling walking in the back door and smelling a clean house.  Such a relief to me!  The flower box fairy also made an appearance.  Spring is coming!  We also received yummy meals from Pam, Lu and Dan & Deb.  So, so appreciated.

I have been super busy this month with bookkeeping busyness.  Kind of a good thing because the month of January always flies by!!  February looks like it is filling up with visitors - another good thing!

GO HAWKS

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